Welcome! My name is Kate and I am 29 years old. I live in New Hampshire with my husband, our daughter, and our dog, Franklin. My daughter, Nora, is currently one year old. She was diagnosed with a form of dwarfism called achondroplasia when I was still pregnant with her. The past year has been a journey of highs and lows (mostly highs). Since learning of Nora's diagnosis, we have had countless doctor's appointments and we have met incredible people who have shaped our journey as new parents to a baby with dwarfism. 

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Before Nora's diagnosis, I did not know much about dwarfism. I had seen little people before but it certainly was not a common experience. Since being welcomed in to the little people community, I have learned so much. I have learned how to use the correct language when referring to people with dwarfism. I have learned how to handle a baby with low muscle tone and a larger head. I have learned to be more compassionate, inquisitive, and confident.

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I have created this resource for many reasons. One reason is that I needed to create something for my graduate school capstone assignment. I will be earning my Master's in Education and I thought that there is nothing more I would love than to educate people about dwarfism. I am also creating this resource because I remember being absolutely terrified when I was handed Nora's diagnosis. It felt like a death sentence and nothing that I could find online helped me feel at ease with what the future held. I want this site to be a positive and educational experience, especially for a new parent who just received a dwarfism diagnosis. 

 

Welcome, I am so happy that you are here.